Two unrelated comments today:
Firstly, the Protest Pity anti-telethon blog thing is up. I didn't know about it until today, but apparently it's an annual thing similar to blogging against disablism day.
Secondly, I'm researching self-care problems in high functioning autistics. I'm thinking of maybe getting together evidence regarding self-care problems in people diagnosed as Asperger Syndrome in order to argue that the 'lack of significant delay in self-care' criteria of AS is misleading. So far, I've found the following articles: one comparing AS and Conduct Disorder in teenage boys, finding that, according to their parents, 50% of the AS boys and 95% of the CD boys were independent in basic self-care (washing, toothbrushing), 5% of AS and 40% of CD boys had no problems with decisions about self-care (eg deciding when to eat), 15% of AS boys and 80% of CD boys had normal telephone skills, 5% of AS and 35% of CD boys could plan their own travel, 0% of AS boys and 25% of CD boys were independent in buying major items, 5% of AS boys and 70% of CD boys had no trouble planning their own routine and 0% of AS boys and 60% of CD boys were independent in leisure activities outside of home and one studying AS or HFA adults that found that out of 16 individuals, 1(AS) had a regular job, 1(AS) was a university student, 3(1 AS, 2 HFA) had a sheltered job, 5 (2 AS 3 HFA) attended a day center and 6 (5 AS, 1 HFA) had no occupation, the one with a regular job was the only one not living off of public assistance, which in 13 of them was some form of disability pension, 9 lived in their own apartment, 1 (the student) with their parents, 5 in a group home and 1 in the hospital. Not much available, but the few studies done show significant difficulties for older 'high functioning' autistics. Note that I don't really think there is a significant difference between the different diagnostic groups or functioning levels, but if they're following the DSM, the AS people should have normal or near normal self-care skills. Instead, they have difficulties with are definately significant, in the sense of needing assistance or accomodation.
Anyway, I just thought of a way to link these two subjects together. One big problem with telethons is that they're raising money for a cure/prevention while providing nothing towards helping actual disabled people live well, with their needs met and their 'voices' (even if not actual speech) heard.
Firstly, the Protest Pity anti-telethon blog thing is up. I didn't know about it until today, but apparently it's an annual thing similar to blogging against disablism day.
Secondly, I'm researching self-care problems in high functioning autistics. I'm thinking of maybe getting together evidence regarding self-care problems in people diagnosed as Asperger Syndrome in order to argue that the 'lack of significant delay in self-care' criteria of AS is misleading. So far, I've found the following articles: one comparing AS and Conduct Disorder in teenage boys, finding that, according to their parents, 50% of the AS boys and 95% of the CD boys were independent in basic self-care (washing, toothbrushing), 5% of AS and 40% of CD boys had no problems with decisions about self-care (eg deciding when to eat), 15% of AS boys and 80% of CD boys had normal telephone skills, 5% of AS and 35% of CD boys could plan their own travel, 0% of AS boys and 25% of CD boys were independent in buying major items, 5% of AS boys and 70% of CD boys had no trouble planning their own routine and 0% of AS boys and 60% of CD boys were independent in leisure activities outside of home and one studying AS or HFA adults that found that out of 16 individuals, 1(AS) had a regular job, 1(AS) was a university student, 3(1 AS, 2 HFA) had a sheltered job, 5 (2 AS 3 HFA) attended a day center and 6 (5 AS, 1 HFA) had no occupation, the one with a regular job was the only one not living off of public assistance, which in 13 of them was some form of disability pension, 9 lived in their own apartment, 1 (the student) with their parents, 5 in a group home and 1 in the hospital. Not much available, but the few studies done show significant difficulties for older 'high functioning' autistics. Note that I don't really think there is a significant difference between the different diagnostic groups or functioning levels, but if they're following the DSM, the AS people should have normal or near normal self-care skills. Instead, they have difficulties with are definately significant, in the sense of needing assistance or accomodation.
Anyway, I just thought of a way to link these two subjects together. One big problem with telethons is that they're raising money for a cure/prevention while providing nothing towards helping actual disabled people live well, with their needs met and their 'voices' (even if not actual speech) heard.
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